04/12/14 – What Started This All


It occurred to me tonight that I haven’t really said what happened to start all this in motion. I have said what is going on and that it was sudden (yeah, that is an understatement).

It started on last Tuesday evening. I was just about finished with work and I reached kind of behind me to grab the phone and realized that as my hand went past my face to the right, my hand disappeared. Ok, that was weird… so I slowed it down, holding my hand to the right of my head and moving it back (your peripheral vision) to see how much was gone. Turned out that even before I got to my face, my hand was missing. Ok, very weird…but I am not a panicky type so what I did was to get online with Group Health (out HMO insurance) and make an appointment with my eye doctor. I was convinced (really!! I’m not making light og it, I really was) that I would go, he would say take these eye drops and I would be home. I did mention the missing hand thing on the online form and they called the next morning to set up the appointment. They seemed much more concerned than I had about this but honestly, I still didn’t think it would be anything bad or that couldn’t be fixed with eye drops. I got an appointment for 4pm and that was it. I worked that day and the missing sight bugged me a little of course but I made some adjustments and that was it. Can I mention that I drove myself to the doctor? Yes…well…ok, this was more challenging. We live in a very small town and we have no 3-4 lane roads, just 2 lane. It wasn’t until I got to Silverdale (WA) where there are double lanes that I realized that this would be a problem with driving and I should have taken Jennifer up on her offer to drive. I had to change lanes to get into the doctors office and had to completely turn way back to make sure that no one was beside me. I did it but you know, that eye doctor would be giving me drops so this will go away so I happily parked and went in.

I have a really good eye doctor and he did lots of tests. I told him it was probably just something for drops and he looked in there, went out of the room, looked in again etc etc. He is very patient. He finally came back and told me that this wasn’t my eyes. Wait…what. Of course it is. Silly doctor. He thought I might be having a little stroke. Wait…what? Silly doctor. nd he said I need to get up to the emergency room and who could take me. Wait…what…I have my car….. OK, I called my sister who doesn’t live far and she came. We went up and they were expecting us. It was at this time that I noticed the concerned faces around me and I got thinking this might be more serious than I thought. I tend to blow things off and roll with the punches. Maybe this was going to be something I couldn’t blow off and that tends to get my attention a little.

By now, the family is beginning to trickle in one by one and they are taking me for a cat scan. I have to say here that while I am seeing concerned faces, I am laughing and joking with the doctors and nurses (who, on hindsight, must think I am either faking or nuts). I don’t get upset by medical stuff having been through a lot in my life. So I am having a cat scan but joking with them about my head being empty….

So the results come back and this I remember pretty clearly. A nice doctor came in and said that they had found a mass on the back of my brain. Wait…….what…wtf….but I talked to him, I asked questions, I laughed and said well that is a bother but I held it together. He told me he had ordered an ambulance and they would be taking me to Virginia Mason Hospital (I could type in wait..what again but you must know that is coming and continues to this day).  I do have to say at this point that I never really get upset about things and I am very cheerful but the second that door shut I threw both hands over my mouth and screamed and started to cry. I do have to say that I did this silently as I could because I didn’t want to disturb both my family or the other patients but it was such a strong feeling to just scream and scream that I had to do something. But my family, who is not used to this kind of behavior out f me must have been shocked. Linda later said I went from a cheerful bird to screaming in a second and I feel bad about that. Honestly, it was never on my radar to ever get such news and I simply broke down. I could not have stopped it and I think it probably helped. But I did it all silently and looking back, it was a weird moment in my life. By the time the doctor came back with the trips plans all nailed down, I’m sure he could tell I had cried but I was back to being a cheerful bird and remain so pretty much through it. Don’t get me wrong, I have cried, sometimes in the middle of sentence (OFTEN when reading the posts on face book). It would be crazy not to cry and I do so.

So that was last Wednesday and here I am on Friday night (well. I guess it is Saturday morning) and I haven’t gone home yet. I never got to make plans. Before I left for Seattle, I got Jen to make a list of what to bring to the hospital, what to feed to what bird and fish, that she will have to find my passwords and pay the bills (do you get the idea that I am fully in charge of everything at home…I am and please don’t you let yourself get to this point  yourself, delegate now and make a list of what each pet eats). I could tell Jennifer was very upset but her thumbs flew over her phone and she took down everything I was spewing forth. Kevin and Mom kept saying it will be ok, just lay back down but I had to get it all out because I am truly the only one who knew and and it was important to me.

So here we are. I was so lucky to get a wonderful doctor assigned as my surgeon and he will be with me a long time. I have to say that Virginia Mason Hospital in Seattle is the best. They were and are concerned for my well being but what means the most to me is that they were also concerned about my family and took such good care of them. That means a lot to a control freak who suddenly has to maybe pay attention to her health a little….whatever…

Thanks again for listening. I tend to get long and rambley with my writing but it is me. I will keep up the updates. for those brave souls who wish to follow along. The future of treatment still holds a bit of the unknown and in the middle of the night gets scary. On the upside, I have more than a little weight to loose and expect it will be coming off…along with my precious long hair but that is for another blog post…hehehe. Something for you all to look forward too





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